Its not hard to put together something basic, a personal electronic health Record is actually super easy. The adoption is the problem. Here is why:
1. People are far more likely to store and curate their vacation pictures than healthcare data. There is a behavioral aspect to this. There isn't a lot of 'feel good' attached to storing a good HDL/LDL reading. Quite the opposite when it's bad.
2. Most countries develop their own version of a EHR, sometimes controlled by patients. Success rates vary but they remain a very useful tool for managing chronic conditions and patient peri-operative journeys. Once governments (local or national level) take over, there is very little incentive for anyone to develop.
3. There have been many attempts to create a patient-led EHR by companies but it is difficult to get off the ground and sustain due to data ownership, security, sharing and commercial complexities.
4. Storing the data itself is trivial. FHIR covers this well and within haematology at least, the support for standardization is strong. LOINC, SNOMED and UCUM are well established. Just be careful to store the initial units and reference ranges.
5. My personal take is that personal EHRs will take off once a good open source p2p toolkit implements superb encryption-led access control across workflows with top institutions comes into play. This is unlikely because of how EMRs lock up provider data.
1. People are far more likely to store and curate their vacation pictures than healthcare data. There is a behavioral aspect to this. There isn't a lot of 'feel good' attached to storing a good HDL/LDL reading. Quite the opposite when it's bad.
2. Most countries develop their own version of a EHR, sometimes controlled by patients. Success rates vary but they remain a very useful tool for managing chronic conditions and patient peri-operative journeys. Once governments (local or national level) take over, there is very little incentive for anyone to develop.
3. There have been many attempts to create a patient-led EHR by companies but it is difficult to get off the ground and sustain due to data ownership, security, sharing and commercial complexities.
4. Storing the data itself is trivial. FHIR covers this well and within haematology at least, the support for standardization is strong. LOINC, SNOMED and UCUM are well established. Just be careful to store the initial units and reference ranges.
5. My personal take is that personal EHRs will take off once a good open source p2p toolkit implements superb encryption-led access control across workflows with top institutions comes into play. This is unlikely because of how EMRs lock up provider data.